Sorry. Haven’t blogged for an age. I was waiting for good news to share. Hence the radio silence. Better get on with it.
As I confessed last time, not been feeling well. Lots of constant pain in bones especially sternum, ribs, and chest wall. Tired and lack of energy. I was looking forward to going to my friends place in Barbados- how lovely of her to invite me. Thought it might do the trick.
However. The couple of days I had some emotional stuff happen and it was the last straw after the six months of pain and feeling progressively worse and I crumpled. Couldn’t stop crying, felt even more pain and generally had a meltdown. I couldn’t get out of bed to the taxi, never mind to the airport and flight on my own. So I couldn’t go. Stood up my best friend. How rude. Luckily she couldn’t have been more understanding x
I had a bad couple of days or so to rest.
It became apparent to my family that I need help and went to the oncology assessment unit. They are wonderful.
I’ve been checked out. This is where we are at with Brain and Body
Brain – I have symptoms like before, affecting speech, texting, reading and writing . (Alopogies for brief communication- its exhausting. Thank goodness for spellcheck help).
There may also be symptoms with my right hand. All my worst nightmares. Boom.
I am awaiting an urgent Brain Scan to understand what’s going on. I am on steroids to reduce the swelling which helps with speech (but make me feel crap).
Body – body scan to check bones, chest, lungs etc to see what’s going on. Got a cancellation appointment so that has been done but no results yet.
So it’s a waiting game until be know what we are dealing with.
I guess this is the drill from now on.
I used to feel that I didn’t cancer- almost. I don’t feel that right now. I feel that I’ve graduated. A bona fine cancer graduate.
So much so that I now have my very own McMillan nurse and very lovely she is too.
In other news,I am feeling much better mentally and physically and have stopped the painkillers. Thank you to my sister especially, my family who make everything better. And the friends who have got my back while I’m feeling so vulnerable. You are the reasons I am feeling better already, who will help me to heal and recover, and make me laugh.
In fact, you’re incredible. Thank you.
While waiting for appointments etc we are popping over to our place in Cyprus for sun and r and r. Hope it turns ok this time! And I will be ready for whatever when we come back.